Vancouver: Rare Disease Foundation co-founder and board member Dr. Millan Patel will be awarded the 2015 Rarity Scientific Leadership Award by the Canadian Organization for Rare Diseases (CORD) on March 5 in Toronto. The award recognizes his efforts to give hope to parents with children that have rare diseases, and to his contributions to rare disease research and clinical care. The award will be presented just days after International Rare Disease Day is recognized on February 28.
This award is presented to a distinguished clinician/researcher whose career represents a unique blend of scientific excellence and support of the patient community. Dr. Patel’s leadership in rare disease is extensive. He is also the Research Director of the Rare Disease Foundation as well as a Clinical Assistant Professor, Department of Medical Genetics at the University of British Columbia. CORD cited Dr. Patel’s work as a clinical and research geneticist providing diagnosis, treatment, and support to patients and families, and for researching genes and their impact on severe and life-threatening diseases.
“It is a tremendous honour to receive this award from an organization such as CORD,” said Dr. Patel. “I am grateful for the recognition, but there is still much work to be done in the field, especially as it pertains to health policy, delivery of care, and funding for rare diseases at all levels of government.”
Dr. Patel is also a founding board member of the Rare Disease Foundation and its highly touted microgrant research program. He has been a champion for encouraging the participation of the impacted community (e.g. parents of children with rare diseases) in adjudicating and monitoring its research grants.
Speaking on behalf of the Rare Disease Foundation, Dr. Patel stated, “We will continue to work in parallel and support of our friends and colleagues at CORD to move forward an agenda of caring for those living with and affected by rare diseases.”
The Rare Disease Foundation is an international organization, founded in 2008 and based in Vancouver. With a mission to transform the world of rare disease care, the Rare Disease Foundation is focused on an innovative patient-based, treatment-focused model called translational care where research is care. This is the second CORD Rarity Award for a member of the Rare Disease Foundation, with another founding board member, Isabel Jordan, having received a Rarity Award of Honour in 2013.